The National Coalition for Cancer Survivorship (NCCS) is a national organization representing all cancer survivors in the pursuit of quality cancer care.  NCCS is engaged in a number of public policy initiatives aimed at providing all cancer patients the opportunity to be fully engaged in cancer care decision-making and management and ensuring that cancer patients receive well-coordinated care that incorporates symptom management with active treatment.  NCCS supports the development and communication of a personalized plan of care as a core element of quality cancer care and seeks reforms of the health care system to stimulate patient demand for such plans and to encourage health provider support for care planning.

Better quality of cancer care can be achieved by reforming health care payment systems, testing new models for care delivery, creating incentives for care planning and coordination, and increasing patient demand for more communication and coordination of care.  NCCS works collaboratively with cancer survivors and organizations representing all parts of the cancer community to pursue health care delivery and payment policies that boost the quality of cancer care.

 In 2013, NCCS public policy efforts will focus on:
  • Health care delivery and payment reforms that provide cancer survivors access to cancer care planning services and coordinated care.
    • Achieve enactment of the Comprehensive Cancer Care Improvement Act establishing a new Medicare service for cancer care planning and coordination.
    • Encourage delivery by physicians of transitional care management services, as established in the 2013 Medicare physician fee schedule, to foster continuity of care from the hospital to community for cancer survivors and other patients.
    • Encourage federal policymakers to test and evaluate innovative models for cancer care delivery, including cancer medical homes and systems that foster provider-patient planning and communication.
  • Implementation of the Affordable Care Act so that it best serves the needs of cancer survivors.
    • Ensure that the essential health benefits provided through the health exchanges are adequate for the delivery of patient-centered, high-quality cancer care.
    • Protect patient access to clinical trials consistent with provisions of the ACA and ensure access to out-of-network care when necessary and appropriate.
    • Education of patients and health professionals to facilitate cancer care planning and coordination.
    • Resources to support an efficient and effective cancer drug review process at the Food and Drug Administration.
      • Ensure adequate resources for high-quality review so that safe and effective new cancer drugs reach patients expeditiously.
      • Support FDA efforts to strengthen cancer clinical trials and accelerate therapeutic development.